'My baby's brain tumour symptoms were dismissed as colic'

"Back at the hospital emergency department, the mum and baby were about to be sent home by staff after being told there was an eight-hour wait. But when another 10-day-old baby came in with a seizure, a doctor was called - he subsequently examined Molly and rushed her straight through. He measured her head and it was "off the chart", said Corinne, so the doctor sent her in for a CT scan."

"The results came through instantly, and Corinne was told Molly had a large mass on her brain. She was sent straight to Alder Hey Children's Hospital, in Liverpool, where she underwent nine hours of surgery the following morning to remove the tumour Baby Molly then had a year of chemotherapy, and took five different types of chemotherapy drugs as part of a clinical trial. One of the trialled drugs caused her to stop breathing, and she had be put on a ventilator."

Newborn Molly showed unsettled behaviour and had three seizures at three weeks, with increasing head size, vomiting and eye deviation by eight weeks, but symptoms were initially dismissed as colic and reflux. At 12 weeks a bulging fontanelle led to emergency imaging that revealed a large brain tumour. She underwent nine hours of surgery at Alder Hey Children's Hospital, followed by a year of chemotherapy within a clinical trial that involved five drugs; one drug caused respiratory arrest and required ventilation. Molly now has hearing loss and global developmental delay. Her mother calls for improved awareness of infant brain tumour signs.

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